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What Your Doctor WON'T Tell You About Fibromyalgia & Chronic Pain



Have you been diagnosed with Fibromyalgia or chronic pain? As I reach my 10 year anniversary of being diagnosed with Primary Fibromyalgia, here’s a list of …

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38 Comments

  1. Thank you for sharing your experience! I got diagnosed with fibromyalgia yesterday after years of seing doctors and taking pills after pills that made me feel worst in the end it's almost like they dont really care..

  2. 100% truth!! My mom suffered massive for over 10 years. Tried every drug known to only worsen her problems. She was suicidal & admotted to psych ward many times. She is now on a strict diet of only fruit vegetables, baked fish & chicken. She has had no meds & doing fabulous for 6 months now. We hit bumps in the road many times when she really wants to eat something off plan. She always regrets it because one piece of gluten or other bad food can bring back a solid week of extreme pain until it is cleansed of toxin.

  3. You are spot on. I've been through very similar. I look forward to more of your videos. It's because of good people like you spreading the word that I realized that I was on the toxic medication. I was on cymbalta and I became very suicidal and alarmed thinking that I was going to die or agitated that I should kill my self as the only way to escape the anxiety. Every night at 9pm my body was craving the tablet. I have never been addicted to anything and I was in a state. I went cold turkey and quit the medicine because I didn't want to taper. My Dr told me I was exaggerating. I lost my job and nearly lost my home. I've been drug free since and I have a job and home. Thanks for nothing stupid drs.

  4. Please, please, never get on lyrica. I had the worst trouble getting off of that drug. It was like I was dying. It must be how those haroin eaddicts feel while trying to withdrawal. Gabapenten made me crazy, too.

  5. I was diagnosed with this in 2008, but I found out that it was actually migraines. Have you tried LDN? Low-dose naltrexone. It helped my migraines, and it also helps with fibro. I think the opioids are actually worse for these conditions. Also, medical marijuana helps.

  6. Thankyou for sharing. This has been my journey also. The prescription meds were poison to my soul, I came to the conclusion, why take a poison? Ditching it all was the best decision I ever made. Holistic medicine and diet was the way to go. I keep a diary of what I take , dosage and for what symptoms. As I lived in a place where the access to healthcare was difficult , so I had to find my own path . It included a spiritual journey, getting to know oneself and listening to your body. God has been good, bringing support people when I needed it most. It has been a battle of the mind , diversion is in the way of creativity , in my case sewing historical costumes. But the war isn't over yet, the victory surely must be mine ! Long healthy life, to attend my grandchildren's wedding is my reward/ goal . I'm 65, just retired and have been doing this for over 20+ years now , have kept at outside work until 3 weeks ago. Now it's my time, to do what I want, everyday. God bless you all.

  7. Thank you for this video Dana. I stand by everything you say on your videos. This has been my experience exactly here in Canada. I went through hell on Cymbalta and trying to get off of it. It nearly killed me with suicidal thoughts and horrific depression caused by this drug. Thankfully I saw one of your videos on Gabapentin so thank god I never continued on this dangerous drug. It was making me so drugged I was even worse than when I didn't take it. If you have been diagnosed with Fribromyalgia, the hell this woman is vlogging about is absolutely true. Doctors are failing us and not listening. Pharmaceutical companies are as dangerous today as any street drug dealer. This needs to be addressed. We must hold the medical industry accountable for only following drug pushing as the only way to health.

  8. Is there a direct link between taking benzos and having fibromyalgia? I have fibromyalgia as well. When I told my doctor about my symptom I simply told her "My body feels like it is on fire" I am also in a Chronic Pelvic Pain Program which only focuses on Pelvic Pain. But my urologist said that every symptom I have other than the pelvic pain due to surgery is all sign of fibromyalgia, which they unfortunately do not treat there. So now I have to go see a fibromyalgia specialist. My family doctor looks at me like it's in my head. I wish.

  9. its caused by GMO foods …mixed with poisons from vaccines…cannabis is a great help and please research magic mushrooms curing pain de[ression and addictions////check lymph nodes and nano bites ….

  10. Have you heard of the FM/a test? It's a new blood test to detect fibro. This place out in California is doing a clinical trial for fibro patients. If you search FM/a test in YouTube, it'll pop up for you. I've had fibro now for over 20 yrs & have tried damn near everything w/ no luck at all. ESP w/ the prescriptions, they only caused terrible side effects for me. Right now I'm on norco for the pain, flexeril at night, & I take some OTCs like Aleve & Advil. I also bought myself a nice bed smooshy topper & a chilipad for my bed. Fibro is a monster of a disease, I hope they get some sort of treatment out soon

  11. https://news.ki.se/people-with-fibromyalgia-have-inflammation-of-the-brain Iโ€™ve finally found something that works as in makes my days more livable by treating it as straight up inflammation plus neuropathic pain ie akin to MS and that works for me . So look into supplements to handle inflammation and neuropathic pain that way you can gradually over a year or two ease up on other stuff what you are basically doing is treating the inflammation and keeping it as good as you can in check. So a combo that works for me is magnesium citrate 250-300 mg twice a day evening and night, 1000-1500 mg omega 3 x4 a day ( the latter the last two weeks of the cycle )d3 10 000 iu day those first 3 need to be taken together to reach full potential and gets much better effect together. Then add to that 500 mg turmeric and 500 mg ginger x 4 a day ( needs to be taken with a good oil for example omega 3 or coconut oil to help absorption , fortunately we are already taking omega 3) here you might want to add bioperine 4 mg x4 a day helps potentiate the turmeric and ginger together ( not a must but you might want to do that in periods gives extra boost against pain) and finally 2,5 mg methylcobalamin ( not ordinary b12 ) and 2, 5 mg folacin ( not folic acid) a day. That is the combo that 1 pain specialist, 1 fibromyalgia specialist and one gynacologist has come up with for me together with me, ( have endometriosis which often comes with fibro and can be treated) need to check that nothing of this messes with your other medications or healthproblems . The way We did it is I took paracetamol 1 000 mg x4 a day plus kodein 50mgx4 plus two extra a day as needed a day plus Naproxen 1000 mg x2 a day and then We introduced the rest over a period of 1,5-2 years as described above. Eventually Iโ€™ve been able to first cut out the paracetamol ( after about a year , hadnt added the the methylcobalamin and folacin yet at that point) which was a concern because of kidney and liver since I had been taking the max dose for over 15 years, following that was the Naproxen which I Now only take during really bad days plus menstruation pain and finally cut back on the kodein first to 50mg x4 a day and finally quit that last part you need a doctor to do because it can be uncomfortable and dangerous to go cold turkey ( My trick has been over the years to be able to keep taking kodein without loosing effect to once a year to every 6 months do a detox When I had a bad flu , stomach bug or a really bad cold for a couple of days whilst you are already feeling crappy on a tip from a specialist in neurology) that is NOT a proper detox that can easily stretch out 6 weeks acute phase and for me it took about 7 months still not quite over the last side effects and to be clear I was never psychologically dependent but I needed the pain medication to survive because I was regularly in pain 8-9,5 on the pain scale with meds everyday. DO NOT ATTEMPT to go cold turkey on antidepressants and pain meds without DR help ! It can be really dangerous! Now I have a larger span about 7-9,5 out of 10 more mobility though Iโ€™m still in an electric wheelchair and should I need it I have the option of using the other medication as well . Quality of life up and sexlife is a possibility again, and at this point Iโ€™m about as well medicated for my depression as I ever got on antidepressants both for the pain and the antidepressant effect. ( the antidepressant that I would take again would be buspiron actavis 5mg morning and night and perhaps voxra 150 mg but at this point this works better for me, not excluding taking either of them if I should need them again – also two of the antidepressants that normally keeps sexdrive and orgasm a possibility if the rest of you will cooperate)

  12. ๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘I recently just got diagnosed with fibromyalgia after years and years of saying how much pain and how I don't feel good and yep I got labeled as a hypocrite and still they push that junk gabapentin deluxatin bs and this disease sucks because even my own family doesn't understand and I appreciate your message and tip so thank you!!

  13. I have always been forwarned that the reason for having to go through the test subject effect is because not a lot is known about fibromyalgia it has just barely been recognized as a legit diagnoses and now they say it isn't called fibromyalgia pain it is fibromyalgia syndrome and the pain is just one of many symptoms of fibromyalgia and yes after a while your body does build a tolerance to medications, anesthesia, novocaine, and may need more to sedate you or numb you over time it is not your fault or the doctors and often times before you become diagnosed with fibromyalgia you can be misdiagnosed or also often labeled a hypochondriac . After more than 15 years of being diagnosed with fibromyalgia I am barely learning things about it and I am not to far behind the doctors.

  14. I have had similar experiences. From bad drs, to no relief the last 20 years. But I am determined to push through and have a few hobbies, and at least find something which makes me ignore the pain for awhile. Iโ€™ve found everything thing you said to be pretty much true for myself as well. It is depressing. Thanks for sharing! God Bless!

  15. Iโ€™m on Celexa , wellbultern , now lyrca and Iโ€™m trying to get off of this shit … the tapering was talk about and now Iโ€™m on more … now with me and the withdrawals Iโ€™m getting this Brian zaps โšก๏ธ now that I seen your video Iโ€™m going to make positive changes in my life… thank you ๐Ÿ˜Š

  16. Your video is probably one of the best and most important for anyone with a chronic disease/syndrome/problem or auto immune problems as well. You have listed the main issues I have experienced in over 20 years of trying to function with fibro and RA. Thank you for noting the importance of diet and this should include cleaning products and soaps/lotions as well. One of your best points is the one about prescriptions – if a doctor relies mainly on drugs to treat these problems it isn't the doctor's body that will be damaged but your own. For many of these popular 'fix-it' meds the treatment is more dangerous than the original problem. I am in my 70s now and the meds they had me on made me very unsteady on my feet and I had falls. A careful diet and gentle lifestyle (Pace yourself!) can make a huge difference, without the drugs.

  17. Doctor: "This pain is just all in your head…"

    Me: "Actually it's in our brain and nervous system you idiot, but thanks for your support!!"

  18. I agree with you. I don't take any of those medications. Because they dont work and it causes numbness and pain all over. I know I'm gluten intolerant, and diary is also a problem for me. And a another problem is toxic people in your life. They cause stress which makes us more sick.

  19. I have sickle cell disease. I've been to 2 ERs where they've just sat me in a room for hours with absolutely nothing. My doctors whom I see monthly don't even know what to do anymore. They've started trying to label it as chronic pain when it's very much acute.

    I'm just at my end with it all.

  20. I have dealt with this since the early 80's with the pain becoming more life limiting in the 90's. I feel like I've wasted my life and potential due to this crappy illness. Having to live near poverty, only able to work part time, and now terrified about my future since my husband's health is fading fast. I don't know how much more time we have together. Once he is gone, I fear homelessness. I hate fibromyalgia so much.

  21. I appreciate what you have done here. I am sorry you had such crappy doctors. I found out all these things 25 years ago after I had it for 10 years. When I got it, Doctors admittedly had no experience with it. I never had one tell me itโ€™s all in my head. Yes we tried different drugs, some dangerous. I was so sick I would have tried anything. Effexor , venlafaxene, was the worst for me. Getting off that drug was hell on earth. Iโ€™m talking 5 months of the worst side effects you can think of. Cymbalta however does help me. I agree on diet. The Keto diet is probably the best one out there. Thanks love. Take care. โค๏ธ๐Ÿ™๐Ÿป๐Ÿ‡จ๐Ÿ‡ฆ

  22. I am now into 40 years with fibro and have been down that ginny pig roller coaster, also am now off all scripts due to no relief! and horrific side affects, how every you also have to be aware of health food industry and vitamins they also will rip you off selling you stuff that is fake. Docs get a kick back for every drug they put you on. Your list of food to stay away from is good, need to include sugar that's a big no no. Thanks for your report.

  23. Thank you so much Dana ! I have been through a lot of what you just mentioned with Fibromyalgia chronic fatigue, n then some ! Life has been a living hell for me , but with the Lords help l will prevail , he made me a fighter for a reason l found my reason whenever l first became disabled with this chronic illness , thank you l have taken myself off Meds completely, they donโ€™t help do more harm then good . l use a lot of mind of matter , and prayer ๐Ÿ™โค๏ธ

  24. I do not understand what kind of doctors you have in the US. In Norway we are admitted to a hospital over several days where we learn how to handle cronic pains. The drugs you talk about is rarely perscribed, and if they are, it is only for a short period. All drugs, painkillers or others, comes with a long list of how the medication works and what kind of side effects might occur.

    When a doctor tells you the pain is all in our heads, they ar actually right. The muscels sends signals to the brain and it tells you that now you feel pain somwhere in your body.

    One thing that I have learned over the past thirty years of FM is that the less I use my body the stronger the pain is when I finaly use it. So for me getting up in the morning, pain or not, and do something during the day, with some rest in between chores of course, is the best medisin.

    During my work I have met quit a few people with Fm. My advise to them when it comes to drugs has allways been: Stay away from the opiods. They give some relief in the moment, but it takes only a few days, sometimes a little longer and you are hooked. I am sure that many of you have discovered that suddely they do not work as they used to, and you have to take moore for the same effect. Instead, take something else. If you have a bad day, do something that is not so nice (housework, gardenwork etc) for a couple of hours, then rest for for a period of time, then moore work, then take a painkiller and rest for a while. When you have a good day, do something nice. Take your children to the beach, have lunsj with the girls, go out to dinner with your husband. Over the years people have thanked me for this advice. I do it myself and I know it works. Hopefully you too will discover that the pains get a lot easier to live with.
    Bente L.

  25. Had to do many of these things, too! Big change in diet! Unhappiness, loneliness, depression, empathy, and being completely misunderstood, …contributes to the pain.

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